When Your VA Award Letter Costs You Medicaid: A New Jersey Case Study

When Your VA Award Letter Costs You Medicaid: A New Jersey Case Study

The New Jersey Appellate Division decision, A.D. v. Essex County Department of Family Services, A-2316-23 (decided May 5, 2025), illustrates how a Medicaid application for long-term care can unravel not because the applicant was ineligible, but because of confusion over income rules and missing paperwork. The case involved a resident of an assisted living facility in West Orange whose application was denied twice by the agency and twice appealed — with the Administrative Law Judge ruling in the applicant's favor both times — before DMAHS rejected those decisions and the Appellate Division affirmed the denial. The court's reasoning touches on several issues that arise regularly in NJ Medicaid applications for long-term care: what counts as income, when a Qualified Income Trust is required, and what happens when you cannot produce exactly the documentation the agency demands.

The Income Limit and the QIT Requirement

To qualify for Managed Long Term Services and Supports (MLTSS), the NJ Medicaid program that covers long-term care benefits an applicant must meet both a resource limit and an income limit. The resource limit is $2,000 in countable assets. The income limit is a gross monthly income cap, which currently stands at $2,982 per month (for year 2026). If your income exceeds that cap, Medicaid will not approve your application unless you establish and fund a Qualified Income Trust, also called a Miller Trust or QIT.

A QIT is a legal arrangement in which the applicant's total source of income above the cap is deposited into a dedicated trust account each month before being used to pay for care. The trust does not eliminate the excess income — it channels it in a way the Medicaid rules permit. If the income is over the cap and no QIT exists, the application will be denied. For more on how this works, see my post on Qualified Income Trusts in New Jersey.

In A.D., the agency determined the applicant's income exceeded the limit and required a QIT. The applicant's representative pushed back, arguing that the VA Aid and Attendance benefit included in the applicant's income is not countable for Medicaid purposes and therefore no QIT was needed. The court rejected this argument — not on the merits of whether Aid and Attendance is countable income, but because the applicant never provided the documentation the agency needed to make that determination in the first place.

The VA Award Letter Problem

This is where the case turns practical. VA pension awards can include several distinct components: a base improved pension, an Aid and Attendance supplement, a Housebound allowance, a surviving spouse award, and others. For Medicaid purposes, different components are treated differently — some are countable income, some are not. The agency cannot make that determination from a letter that shows only a total monthly benefit amount.

New Jersey has addressed this directly in Medicaid Communications 12-09 and 15-08. Under those directives, an applicant receiving VA benefits must provide either a letter that specifically identifies the dollar amount allocated to Aid and Attendance, or documentation showing that the VA has determined the applicant's unreimbursed medical expenses reduce their countable income to zero. A letter showing only a lump-sum benefit amount is not sufficient.

In A.D., the applicant provided a VA award letter that showed a surviving spouse benefit with Aid and Attendance listed, but did not break out what portion of the total was attributable to each category. The agency sent a sample letter showing the format it needed and asked for a compliant document. The applicant's representative responded that the VA does not provide a separate breakdown — and directed the agency back to the letter already on file. The agency denied the application. The court agreed: without the itemized breakdown, the application was incomplete, and the denial was not arbitrary or unreasonable.

The Resource Limit and the Timing Problem

The applicant also sought Medicaid eligibility retroactive to November 1, 2022, arguing that her bank balance on that date was below the $2,000 resource limit because a check written to the nursing facility had cleared and reduced the balance to $335.80. The agency looked at the bank statement for the following month, which showed a balance of $2,696.71. The applicant argued a second check, written in early November, had also cleared by month's end and would have brought the balance below $2,000. The bank statement did not confirm that the check cleared when claimed, and the court found no basis to disturb the agency's finding that the resource limit was not met.

The clinical eligibility piece followed the same pattern. The applicant argued that a Pre-Admission Screening request made in December 2021 should establish her clinical eligibility date, but the regulation is explicit: clinical eligibility begins on the date the screening is completed, not the date it is requested. The record showed the screening was not requested until December 29, 2022 and completed January 9, 2023. The court found no evidence to support an earlier request date.

What This Means If You Are Applying

The A.D. case is a reminder that a Medicaid application for long-term care is a documentation-intensive process with little margin for error. Several things are worth taking from it.

First, if you or a family member receives a VA pension of any kind, obtain the most detailed award letter the VA will provide before filing a Medicaid application. If the letter does not itemize the dollar amount for each benefit category — Aid and Attendance, surviving spouse benefit, Housebound allowance, and any others — request an updated letter from the VA or contact a veterans service organization for help. The agency handling the Medicaid application needs that breakdown. A general award letter will not be enough.

Second, if your gross monthly income exceeds the Medicaid income cap, a QIT must be established and funded before the application is filed. It cannot be set up after a denial and applied retroactively. The income cap and the QIT requirement are not technicalities — they are threshold eligibility conditions.

Third, if you receive a request for information from the County Social Service Agency, respond fully and on time. The agency must give you an opportunity to provide missing documents, but if you cannot supply what is requested ask for more time or provide documentary proof establishing your good faith effort to respond. For more on how to challenge a denial you believe was issued in error, see my post on contesting an arbitrary Medicaid denial in New Jersey.

Finally, be precise about timing. Resource eligibility is determined month by month based on countable assets at the beginning of each month. Pending checks, deposits, and transfers need to be documented with bank statements that actually show what cleared and when. And remember that both financial eligibility and clinical eligibility must be satisfied at the same time — meeting one without the other is not enough.

Medicaid planning for long-term care is not something to approach without preparation. The rules governing income, resources, and documentation are detailed, and mistakes are difficult to correct after the fact. If you are in the five-year lookback period and considering a Medicaid application, see my overview of the five-year lookback rule in New Jersey for background on how prior transfers can affect eligibility.

When a Spouse Won’t Cooperate: The Medicaid Spousal Waiver in New Jersey

When a Spouse Won’t Cooperate: The Medicaid Spousal Waiver in New Jersey

Applying for Medicaid to cover nursing home care requires disclosing financial information not just for the applicant, but for the applicant’s spouse as well. That requirement makes sense when both spouses are willing to participate. It becomes a serious problem when the spouse living at home — known in Medicaid terms as the “community spouse” — refuses to provide that information, or simply cannot.

A New Jersey appellate decision illustrates exactly how this problem plays out, and what an applicant can do about it.

The Two Spouses in a Medicaid Application

When one spouse needs nursing home care and applies for Medicaid, that spouse is the “institutionalized spouse.” The spouse remaining at home is the “community spouse.” Federal and New Jersey Medicaid rules require the agency to assess both spouses’ combined resources, even though only one spouse is applying for benefits. This is meant to prevent asset-shifting between spouses, but it also means the community spouse’s bank records, income, and other financial information become part of the application.

Most of the time, both spouses cooperate and the process moves forward. But what happens when the community spouse won’t provide that information — whether out of refusal, illness, age, or simply being overwhelmed?

The Spousal Waiver and Spousal Refusal

Federal Medicaid law, 42 U.S.C. § 1396r-5, addresses this exact scenario in two related ways. The first is spousal refusal. Under the statute, if a community spouse refuses to make their income or resources available to the institutionalized spouse, the institutionalized spouse can still be found eligible, provided the institutionalized spouse assigns to the state any right of support from the community spouse. In other words, the applicant transfers to the state whatever legal right they would otherwise have to seek support from their spouse, and the state can then pursue the community spouse directly for reimbursement of the cost of care. The eligibility determination itself proceeds without counting the community spouse’s resources.

Second, and separately, the statute allows the state to waive its resource assessment when denying eligibility would otherwise impose an “undue hardship” on the institutionalized spouse. This is the provision New Jersey’s Division of Medical Assistance and Health Services (DMAHS) has applied in practice when a community spouse is uncooperative, but DMAHS has historically construed this waiver narrowly — generally limiting it to cases involving a documented break in the marriage, an unverifiable death or divorce, or a community spouse whose whereabouts are unknown.

That narrow approach was tested directly in N.S. v. Division of Medical Assistance and Health Services, an unpublished Appellate Division decision from 2019.

What Happened in N.S.

N.S. was an 87-year-old man admitted to a nursing facility. Before his admission, he had lived with his wife, who was 86. His daughter, acting as his authorized representative, applied for Medicaid on his behalf and began the lengthy process of gathering financial documentation — a process that dragged on for months as the county welfare agency made repeated, sometimes inconsistent, requests for records.

The daughter ran into a wall when it came to her stepmother’s financial information. The wife was elderly, in poor health, and became distressed every time she was asked for documents. She told her stepdaughter to stop asking. The nursing facility sent her three separate letters requesting the information; she did not respond to any of them. The county agency sent three more letters directly. Still no response.

The nursing facility’s attorney requested a spousal waiver, arguing that denying benefits because of the wife’s refusal to cooperate would work an undue hardship on N.S. The county agency disagreed, reasoning that because the couple had been living together and there was no evidence of a broken marriage, the waiver did not apply. N.S.’s application was denied. Both spouses died within months of each other — the wife in October 2016, N.S. in November 2016 — before the matter was resolved.

An administrative law judge upheld the denial, and DMAHS adopted that decision. The case went to the Appellate Division.

The Appellate Division’s Ruling

The court reversed. It found that DMAHS had applied an overly narrow standard by treating “estrangement” as essentially the only basis for a hardship waiver, without pointing to any regulation or formal guidance requiring that result. The court noted that DMAHS had never adopted regulations specifically interpreting the undue hardship provision — it was relying on an unwritten internal practice.

More importantly, the court held that an undue hardship determination has to be a fact-sensitive inquiry that considers the totality of the circumstances. In this case, the unrebutted facts were that the wife was elderly, in poor health, had asked her stepdaughter to stop asking for information because it was making her sick, and had not responded to six separate written requests from two different sources. There was no evidence that anyone was gaming the system to shield the wife’s assets. The agency, the court found, ignored all of this and focused exclusively on the fact that the couple had been living together before N.S. entered the nursing home — a single fact that does not, by itself, rule out hardship.

The court also found that the agency’s separate basis for denial — that N.S. himself had failed to provide his own financial records — was not supported by the record. The daughter had, in fact, provided the requested information; the agency’s own correspondence simply failed to track what had already been submitted.

The court reversed the denial and directed the agency to process the application without regard to the wife’s resources.

What This Means If You’re Applying

If you are applying for Medicaid on behalf of a spouse and the community spouse won’t or can’t provide financial information, do not assume the application is doomed. Document everything. Keep copies of every letter and email sent to the community spouse requesting information, and keep records of any response — or lack of one. If the community spouse’s refusal stems from health issues, cognitive decline, or sheer distress, get that documented too, ideally through a treating physician or a written account from someone who witnessed it.

Request a spousal waiver in writing and be explicit about the basis: cite the hardship that denial would create for the institutionalized spouse, not just the community spouse’s general unwillingness. And if the county agency denies the request based solely on the fact that the couple wasn’t estranged, know that DMAHS’s position on this issue has been challenged and rejected by an appellate court.

Spousal refusal and the hardship waiver are both narrow tools, and DMAHS does not apply them generously. An elder law attorney can help determine which approach fits your situation and how to build the record needed to support it.

Living With Family and Losing Medicaid: How In-Kind Support and Maintenance Works — and How a Simple Lease Can Fix It

Living With Family and Losing Medicaid: How In-Kind Support and Maintenance Works — and How a Simple Lease Can Fix It

A 70-year-old woman moves in with her adult son after a stroke. Her only income is $1,200 a month in Social Security. She applies for ABD Medicaid — New Jersey’s Medicaid program for the aged, blind, and disabled — and is told she is over the income limit, which in 2026 is $1,330 for a single person. But she earns only $1,200 a month. How is she over income?

The answer is a rule called In-Kind Support and Maintenance, or ISM. It is one of the most commonly misapplied rules in the Medicaid and SSI world, and one of the most fixable. In many cases, a written lease and a monthly rent payment is all it takes to bring an otherwise-qualifying applicant into eligibility. The problem is that many New Jersey counties are still applying an old version of the rule — even though federal regulations changed nationwide in September 2024 to become significantly more favorable to applicants.

What Is In-Kind Support and Maintenance?

ISM is the Social Security Administration’s term for non-cash assistance provided to an SSI or Medicaid recipient in the form of shelter. When someone else provides or pays for your housing — rent, mortgage payments, utilities, real property taxes, garbage collection — SSA treats that assistance as a form of income, even though no money actually changes hands. That imputed income counts against program income limits.

Food was also part of ISM calculations until September 30, 2024, when SSA eliminated it. Food assistance from any source — whether a family member buys groceries, takes someone to dinner, or otherwise provides meals — is no longer counted as income for SSI or Medicaid purposes. Only shelter remains.

ISM is relevant to both SSI and ABD Medicaid in New Jersey. SSI recipients are automatically eligible for NJ Medicaid. But individuals who do not receive SSI — those whose Social Security income exceeds the SSI limit but who are still below the ABD Medicaid income threshold — can be knocked over that threshold by ISM, even though their actual cash income is within the limit. For more background on how SSI and ABD Medicaid interact in New Jersey, see my post on SSI and Medicaid Eligibility in New Jersey.

How ISM Is Valued: The VTR and PMV

ISM is valued using one of two methods, depending on the living arrangement.

The Value of the One-Third Reduction (VTR) applies when the applicant lives in another person’s household and receives both shelter and all meals from the household. Under the VTR, SSA reduces the SSI benefit by exactly one-third of the Federal Benefit Rate — a flat reduction regardless of what the support is actually worth.

In all other shelter-related ISM situations, SSA uses the Presumed Maximum Value (PMV) rule. The PMV is a cap on the amount of ISM that can be imputed — for 2026, it is $351.33 per month (one-third of the federal SSI benefit rate plus $20). Even if a person receives more in free rent, the maximum income SSA will impute is the PMV. For an ABD Medicaid applicant who is not on SSI, the PMV is added to their actual cash income for purposes of the eligibility calculation.

📋 Example:   Maria, age 70, lives with her son and pays no rent. Her only income is $1,200/month in Social Security.   Without a lease: SSA imputes $351.33 in ISM shelter. Maria’s countable income = $1,551.33. She is over the 2026 ABD Medicaid income limit despite having no additional cash income.   With a qualifying lease: No ISM is imputed. Maria’s countable income remains $1,200/month — within the ABD Medicaid limit.

The Fix: The Business Arrangement Rule

This is where the 2024 rule change matters most. Under the revised federal regulation effective September 30, 2024, SSA will not charge ISM in the form of room or rent if the applicant pays rent under a “business arrangement.”

📌 2024 Rule Change (20 CFR 416.1130(b)):   A business arrangement now exists — and no ISM is charged — when the monthly rent required under the lease equals or exceeds the Presumed Maximum Value (PMV).   This standard applies nationwide, to all applicants and recipients, regardless of who the landlord is — including a family member. The PMV for 2026 is $351.33/month.

The practical consequence is significant. Before September 30, 2024, a New Jersey applicant living with a family member needed to pay their fair share of full market rent to avoid ISM — which could easily be $1,500 or more per month in many NJ markets. Under the current rule, rent at or above the PMV — currently $351.33 — is sufficient to establish a business arrangement and eliminate ISM entirely, regardless of what the market rent would be.

The rent must be paid under a genuine written lease and must actually be paid each month. SSA will verify the arrangement. A paper lease with no money changing hands will not survive scrutiny.

Why NJ Counties Are Still Getting This Wrong

⚠️ Important: Many NJ counties are still applying the pre-September 2024 ISM rules — requiring a fair share of rent at full market value rather than the PMV. This is denying benefits to applicants who are legally entitled to them.

The September 30, 2024 changes are federal regulatory changes that apply uniformly in New Jersey. Common errors being made post-2024 include: 1) continuing to require evidence of the applicant’s payment of their fair share of housing expenses, rather than the PMV, 2) continuing to request utility bills when that documentation is irrelevant, and 3) rejecting rental agreements. These are not technical errors with minor consequences. They result in real people being wrongly denied ABD Medicaid coverage they are legally entitled to.

What to Do If You Are Denied Based on ISM

If an ABD Medicaid application is denied — or an existing benefit is terminated — on the basis of ISM, the first step is to review the denial notice. New Jersey is required to explain the basis for the denial and the calculation used. If ISM was applied incorrectly, the applicant has the right to request a fair hearing.

What the Lease Needs to Include

To establish a business arrangement and eliminate ISM, the rental agreement should be in writing and reflect a genuine arrangement. At minimum, the lease should include:

  • The names of the landlord and tenant
  • The address and description of the space being rented
  • The monthly rent amount — at or above the PMV ($351.33 in 2026)
  • The lease term (month-to-month is acceptable)
  • A statement on whether it is inclusive of utilities including gas, electric, water, garbage, etc.
  • Signatures of both parties and the date of execution

Rent must actually be paid each month and documented. Payment by check or money order with a clear notation that it is a rent payment is recommended. Electronic transfers through Zelle, Venmo, or PayPal may be accepted but should include a note identifying the payment as rent for the relevant period. Such payments should be consistent (made around the same date each month) and partial payments should be avoided. Cash payments without documentation create evidentiary problems and should be avoided.

Final Thoughts

The ISM rules affect some of the most financially vulnerable people in New Jersey — elderly individuals and people with disabilities living on fixed incomes in family households. For this population, ABD Medicaid is not a secondary benefit. It covers their medical care, prescriptions, and often their long-term care services. The fix — a written lease with documented monthly rent at or above the PMV — is one of the simplest solutions in elder law and benefits planning.

The 5-Year Lookback Rule in New Jersey: What It Is, How It Works, and Why Timing Matters

The 5-Year Lookback Rule in New Jersey: What It Is, How It Works, and Why Timing Matters

Of all the rules that govern Medicaid eligibility in New Jersey, none catches families more off guard than the 5-year lookback rule. The concept sounds simple enough: before approving a Medicaid application for long-term care, New Jersey reviews the applicant's financial history for the prior five years. What families don't realize — until it's often too late — is just how broadly that review sweeps, and how severely it can delay access to benefits.

This post explains how the lookback rule works in New Jersey, what triggers a penalty, how the penalty is calculated, what transfers are exempt, and what options remain if you or a loved one is already in a crisis situation.

What Is the 5-Year Lookback Rule?

When a New Jersey resident applies for Medicaid long-term care benefits through the Managed Long Term Services and Supports (MLTSS) program the county welfare agency where the application is filed reviews every financial transaction the applicant made during the 60 months immediately before the application date. This 60-month window is called the lookback period.

The purpose of the rule is straightforward: Medicaid is a needs-based program with a strict asset limit of $2,000 for an individual applicant. Without the lookback rule, people could simply give away all of their assets to family members on Monday and apply for Medicaid on Tuesday. The lookback rule is designed to prevent that.

Verification Process

Applying for Medicaid long-term care in New Jersey requires submitting five years of financial records — bank statements, investment account statements, and documentation of all significant transactions. This is not a casual review. The county welfare agency assigned to process the application will scrutinize every deposit, withdrawal, and transfer during the lookback period looking for transactions that cannot be explained.

When the county identifies a transaction it cannot reconcile — a large deposit or withdrawal, an unexplained pattern of transactions, a transfer that does not have an obvious explanation — it will issue a Request for Information letter, commonly known as an RFI. The RFI identifies the transaction or transactions at issue and asks the applicant to explain and document them.

Here is where the process becomes unforgiving. While the county routinely takes weeks or months to process a Medicaid application, the applicant typically has only 14 days to respond to an RFI. An extension can be requested, and if the county grants one it will be only for an additional 14 days at a time. That presents quite a stressful situation because it can take months to locate, organize, and submit documentation that in some cases covers transactions from years earlier.

A written explanation alone will not satisfy the county. Documentation is required — and it usually must exactly match the transaction in question. Acceptable documentation typically includes receipts, invoices, bank deposit slips, check images, wire transfer records, or other records that tie directly to the specific transaction. A general statement that “this money was used for home repairs” is not sufficient. The county wants a contractor’s invoice for the specific amount, paid on or around the date of the transaction.

If the response to an RFI is insufficient — whether because documentation is unavailable, incomplete, or does not match the transaction — the county will treat the transaction as an unexplained transfer and deny the application or impose a penalty period accordingly. Unexplained withdrawals are treated the same way. A cash withdrawal of $5,000 with no supporting documentation may be deemed a disqualifying transfer even if the money was spent on legitimate expenses, simply because there is no paper trail to prove it.

The practical lesson is one that cannot be overstated: keep records. Anyone who may need Medicaid long-term care in the future — or whose family member may — should maintain organized financial records going back at least five years. Bank statements, canceled checks, receipts for significant expenditures, and documentation of any large transactions should be preserved and accessible. By the time the RFI arrives, it is too late to reconstruct a paper trail that was never created.

What Transfers Trigger a Penalty?

Any transfer of assets for less than fair market value made during the lookback window is potentially subject to a penalty. The county does not limit its review to large or obvious transactions. Common transfers that trigger penalties include:

  • Adding an adult child to a bank account as a joint owner and intermingling funds (see my post on joint bank accounts and Medicaid eligibility for how account titling can create problems)
  • Transferring the deed to a home to a child or other family member for less than full market value
  • Paying a family member for caregiving services without a formal written personal care agreement
  • Donations to charities or religious organizations
  • Selling property — real estate, a vehicle, collectibles — below market value
  • Funding an irrevocable trust within the lookback period
  • Cash gifts to children, grandchildren, or other family members, including annual holiday or birthday gifts

That last point deserves emphasis. There is no de minimis exception in New Jersey. The IRS gift tax annual exclusion — $19,000 per recipient in 2026 — has absolutely no bearing on Medicaid’s lookback rules. A family that has been making annual gifts for estate planning purposes under the IRS rules may have unknowingly created a significant Medicaid penalty problem.

How the Penalty Period Is Calculated

When the county identifies a disqualifying transfer, it imposes a penalty period — a period of time during which the applicant is ineligible for Medicaid benefits even though they are otherwise financially and medically eligible. The penalty is not a fine. It is a denial of long term care benefits.

The length of the penalty period is calculated by dividing the total value of disqualifying transfers by a number called the “penalty divisor.” The penalty divisor is a figure set by the state every year that reflects the average daily cost of private-pay nursing home care in New Jersey. As of April 1, 2026, New Jersey’s daily penalty divisor is $420.67. This figure is important to track. For example a decrease in the divisor occurred in 2025, which effectively lengthened the penalty period for the same transfer amount.

📊 Example Calculation   A New Jersey resident transferred $100,000 to their adult children within the lookback period and has no other disqualifying transfers.   Penalty Period = $100,000 ÷ $420.67 = approximately 237 days of Medicaid ineligibility   During those 237 days, the applicant must pay for their long-term care entirely out of pocket — even though they have already spent down their assets and would otherwise qualify.

There is no cap on the length of the penalty period. A large enough transfer can result in years of ineligibility.

Transfers That Are Exempt From the Lookback

Not every transfer triggers a penalty. New Jersey law recognizes several categories of exempt transfers:

  • Transfers to a spouse: Assets transferred to a community spouse are not penalized (though some assets may need to be spent down to meet resource eligibility requirements). This is the foundation of several legitimate Medicaid planning strategies, including the Medicaid divorce strategy I discussed in a prior post.
  • Transfers to a blind or permanently disabled child: Assets transferred to or for the sole benefit of a child who is blind or permanently and totally disabled are exempt. However, if the child receives SSI or Medicaid, transferring liquid assets directly to them may jeopardize their own benefits. In those cases, a Special Needs Trust is typically the appropriate vehicle. See my post on Special Needs Trusts vs. ABLE Accounts.
  • Transfer of the home to a caregiver child: If an adult child lived in the parent’s home for at least two years before the parent’s institutionalization and provided care that demonstrably delayed the need for nursing home placement, a transfer of the home to that child is exempt from the lookback penalty.
  • Transfer of the home to a sibling with equity interest: If a sibling of the applicant had an equity interest in the home and resided there for at least one year before the applicant’s institutionalization, a transfer of the home to that sibling is exempt.
  • Transfers for fair market value: Any asset sold or transferred at full, documented fair market value does not trigger a penalty, because no asset has effectively been given away.

The Penalty Start Date: Why the Timing Makes It Worse

One of the most counterintuitive and devastating features of the lookback penalty is when it begins to run. Many families assume that the penalty period starts at the time of the transfer. It does not.

Under New Jersey Medicaid rules, the penalty period begins on the later of: (1) the date the applicant would otherwise be eligible for Medicaid — meaning they meet both the asset and income requirements — or (2) the date the applicant is actually residing in a nursing facility. In practical terms, this means the penalty period cannot start running until the person is in a nursing home, has already spent down to the $2,000 asset limit, and has applied for Medicaid.

The Single Most Important Takeaway

The 5-year lookback rule is unforgiving in one specific way: the clock starts running when the transfer is made, not when the application is filed. This means that the most powerful Medicaid planning strategies — irrevocable trusts, strategic gifting, asset restructuring — require a five-year runway to be fully effective. A Medicaid Asset Protection Trust funded today does not fully protect those assets until five years and a day from now.

The families who fare best are the ones who start planning before a crisis occurs. If you are over 60, have aging parents, or have reason to believe that long-term care may be needed within the next decade, the time to have a Medicaid planning conversation with an elder law attorney is now.

Final Thoughts

The 5-year lookback rule is one of the most consequential — and most misunderstood — rules in New Jersey Medicaid law. Transfers that seem entirely innocent — an annual gift to a grandchild, adding a child’s name to a bank account, deeding a home to a son or daughter — can result in months or years of Medicaid ineligibility at the worst possible moment. Understanding the rule, the exceptions, and the planning options available is essential for any New Jersey family facing the prospect of long-term care.

Increase in the Medicaid Penalty Divisor Effective April 1, 2026

The New Jersey Department of Human Services, Division of Medical Assistance and Health Services issued Medicaid Communication No. 26-04 on April 6, 2026. The communication announces an increase in the Medicaid penalty divisor, effective April 1, 2026. The penalty divisor has increased from $402.74 to $420.67 per day.

The penalty divisor is the average daily cost of nursing home services in New Jersey, determined through an annual independent survey of all nursing facilities in the state. It is used to calculate the length of a Medicaid penalty period — the period of ineligibility imposed when an individual applying for Long Term Services and Supports (LTSS) has transferred assets for less than fair market value. The number of penalty days is calculated by dividing the value of the transferred asset by the daily penalty divisor, rounded down, with the penalty clock starting on the date the individual is otherwise determined eligible.

For a detailed discussion on transfer penalties read The 5-Year Lookback Rule in New Jersey: What It Is, How It Works, and Why Timing Matters.

Practitioners handling Medicaid planning matters involving asset transfers should update their calculations immediately. Read the full communication here.

When Liens Collide: DDD Can Collect Now, Medicaid Must Wait

When Liens Collide: DDD Can Collect Now, Medicaid Must Wait

A decision from the New Jersey Appellate Division published June 17, 2025 (In the Matter of G.W.) has clarified a critical and previously unsettled area of law concerning public benefit liens. The court held that a lien issued by the Division of Developmental Disabilities (DDD) is immediately enforceable, while a Medicaid lien cannot be collected until the beneficiary’s death — a distinction with significant consequences for estate planning.

The Background

Gabrielle W., an adjudicated incapacitated adult, received residential services funded by both DDD and Medicaid. When she inherited $600,000 from her sister’s estate, Arc of Bergen and Passaic Counties, her court-appointed property guardian, sought to protect her Medicaid eligibility by transferring those funds to a special needs trust. But standing in the way was a $1,052,304 lien from DDD for the cost of her care — a lien DDD sought to enforce immediately.

The trial court declined to enforce the DDD lien, ruling instead that Medicaid’s future estate recovery rights had priority. The court reasoned it was in Gabrielle’s best interest to preserve her Medicaid eligibility and protect the trust. But on appeal, the Appellate Division disagreed.

The Court's Holding

The Appellate Division reversed the lower court’s order, emphasizing that DDD liens are enforceable immediately under N.J.S.A. 30:4-80.1. These liens attach to the property of a living person who receives services from DDD. On the other hand, Medicaid liens can only be asserted posthumously, pursuant to N.J.S.A. 30:4D-7.2, and only against the estate of the deceased Medicaid recipient.

The court concluded there is no statutory conflict: both liens can coexist, but they operate on distinct timelines. In the case of a living person like Gabrielle, DDD had the only legally viable lien. Medicaid’s recovery rights would not ripen until Gabrielle’s death.

Why This Matters

This case is a clear warning to guardians, trustees, and estate planners: Inherited assets cannot be shielded from DDD repayment obligations simply by invoking Medicaid's future claim rights. If a client receives services from DDD and comes into money, the DDD lien must be addressed promptly — either by repayment or through the statutory compromise process. The court also made clear that a “best interests” argument cannot override a legislatively mandated lien. Courts must enforce the statutes as written.

Planning Tip

If you have a loved one who receives public benefits like Medicaid or services from DDD, careful estate planning is essential. Leaving them an inheritance outright — even with good intentions — can jeopardize their benefits and trigger immediate repayment obligations. Instead, consider using special needs trusts or other protective planning tools to ensure their continued eligibility and long-term care without exposing them to liens or disruptions in services.

The G.W. case illustrates precisely what happens when protective planning is absent. Gabrielle's sister died intestate — without a will — which meant the $600,000 passed to Gabrielle outright under New Jersey's laws of intestate succession. There was no will directing those funds into a Special Needs Trust, no advance coordination with an elder law attorney, and no mechanism to receive the inheritance in a protected form. The result was an immediate lien enforcement proceeding that consumed the entirety of the inheritance and left nothing for Gabrielle's ongoing care needs.

Had Gabrielle's sister executed a will with proper special needs planning, she could have directed her estate — or the portion intended for Gabrielle — into a third-party Special Needs Trust. Unlike a first-party trust funded with the beneficiary's own assets, a third-party SNT is established with someone else's money and carries no Medicaid payback requirement at death. Gabrielle would have received the benefit of those funds without triggering the DDD lien, and without disrupting her Medicaid eligibility.

This is one of the most important and underappreciated points in elder law and disability planning: the person doing the planning is often not the disabled individual, but the family member who intends to leave them something. A parent, sibling, or other relative who has a loved one receiving public benefits should have a will — and that will should account for the beneficiary's disability. Leaving assets outright to a Medicaid or DDD recipient, however well-intentioned, can do more harm than good.